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All the windows in the house are covered with reflective film and shades. but still Sherry is drawn to the light. When Sherry is discovered, Jaime begins to scream, 'Get her out of the window!' echoing her mother's cry from the other room. Brother…

The only time the girls can play outside is at night. Usually in the summer it's around 9 p.m. before the Harrisons can venture outside. Kim helps Jaime ride downhill on the sidewalk in front of their house.

On trips to the doctor, Kim lets her daughters 'cheat'. The girls can peek out the dark curtains on the van (through reflective film) to visually explore a world they'll never experience.

Robert keeps a watchful eye on his little sister Jaime, during a trip to the doctor in San Francisco. Jaime is photophobic. When she goes out or is in a bright room, she wears 100 percent UV shielding glasses.

The only time the girls go out during the day is to go to the doctor. In preparation for the venture the girls are coated in #39 sunscreen, bundled in blankets and shuttled from the darkened house-to the darkened van. Robert and Kim squint in the…

Oediatrician Shanee Martin gives Sherry a routine checkup. The younger girl hasn't had to endure the extensive testing that her older sister has, so she doesn't share her fear and dislike of doctors.

Kim and Jim Harrison take Jaime to a dermatologist in San Francisco, a tiring, frustrating trip. They wait a long time at the office and learn nothing new.

To protect their faces from UV radiation, the girls wear converted BMX helmets covered with reflective film. The film cuts down Sherry's vision, but the helmet stays on until the 'safety'(lack of light) of their final destination is ensured.

Sherry and Jaime Harrison have xeroderma pigmentosum, a rare genetic disease, where their genes lack protection from the damage of ultraviolet radiation. Light is their enemy. Sherry, left, is too young to know the dangers and is intrigued by the…

Sister Mary Beth forgot to turn her habit in for cleaning. So she made a dash down the hill, hoping to still make the laundry that day.